KRS 211.597: Duties of Pediatric Cancer Research Trust Fund Board.

The Pediatric Cancer Research Trust Fund Board created by KRS 211.596 shall:

(1) Develop a written plan for the expenditure of trust funds made available under KRS

211.595. The initial plan shall be completed on or before October 1, 2015, and shall

be updated on an annual basis on or before October 1 of each year thereafter. The

plan shall, at a minimum, include the following:

(a) A summary of existing pediatric cancer research, awareness, treatment, and

funding programs provided to children of Kentucky;

(b) A needs assessment for the pediatric cancer patients of the Commonwealth of

Kentucky that identifies additional research funding needs by cancer type and

geographic area, with support for why the identified programs are needed; and

(c) A prioritized list of programs and research projects that the board will address

with funding available through the competitive grant program established

under subsection (2) of this section;

(2) (a) Promulgate administrative regulations to establish a competitive, open gra nt

program to provide funding to not -for-profit entities, academic medical

centers and government agencies offering research funding and treatment for

pediatric cancer to Kentucky children impacted by the disease.

(b) The grant program shall provide fundin g to research projects and programs in

accordance with the priorities established in the plan developed under

subsection (1) of this section.

(c) The administrative regulations shall, at a minimum:

1. Establish an application process and requirements;

2. Set forth program and outcome measurement requirements;

3. Establish an application review and award process; and

4. Provide monitoring, oversight, and reporting requirements for funded

programs;

(3) Promulgate administrative regulations necessary to carry out the provisions of this

section and KRS 211.596; and

(4) Provide to the Governor and the Legislative Research Commission an annual report

by October 1 of each year. The report shall include:

1. The plan developed under subsection (1) of this section for the expenditure of

funds for the current and next fiscal year;

2. A summary of the use and impact of prior year funds;

3. A summary of the activities of the board during the prior fiscal year; and

4. Any recommendations for future initiatives or action regarding pediatric

cancer research funding.