RS 40:1081.11: Krabbe disease; public information

A. The Louisiana Department of Health shall develop and maintain information regarding Krabbe disease on its website.

B. The information provided by the department pursuant to this Section shall include, at a minimum, all of the following:

(1) An explanation of Krabbe disease symptoms, diagnosis, and treatment options.

(2) Information on relevant state agency and nonprofit resources, parent support groups, and available Medicaid waiver services.