N.Y. Public Health Law § 2018: Duties of the department

§ 2018. Duties of the department. 1. FTD disorders reports and data

shall be maintained by the department in a manner suitable for research

purposes, and shall be made available to persons as set forth in section

two thousand seventeen of this article.

2. All information collected under this article shall be confidential

insofar as the identity of individual patients is concerned and shall be

solely for the purposes as provided in this article. Access to such

information shall be limited to authorized employees of the department

as well as persons and organizations specified in section two thousand

seventeen of this article with valid scientific interest and

qualifications, as determined by the commissioner, who are engaged in

demographic, epidemiological, or other similar studies related to public

health.

3. The department shall maintain an accurate record of all persons who

are given access to the information contained in the frontotemporal

degeneration registry. Such record shall include the name of the person

authorizing access, the name, title and organizational affiliation of

persons given access, dates of access, and the specific purposes for

which information is to be used.

4. Any person who, in violation of a written agreement to maintain

confidentiality, discloses any information provided under this section,

or who uses information provided under this section in a manner other

than that prescribed by the commissioner, may be denied further access

to any confidential information maintained by the department.