N.Y. Public Health Law § 2023: Duties of the department

§ 2023. Duties of the department. 1. ALS and MND reports and data

shall be maintained by the department in a manner suitable for research

purposes and shall be made available to people as set forth in section

two thousand twenty-two of this article.

2. All information collection under this article shall be confidential

insofar as the identity of individual patients is concerned and shall be

used solely for the purposes as provided in this article. Access to such

information shall be limited to authorized employees of the department

as well as persons and organizations identified in section two thousand

twenty-two of this article with valid scientific interest and

qualifications, as determined by the commissioner, who are engaged in

demographic, epidemiological, or other similar studies related to public

health.

3. The department shall maintain an accurate record of all people who

are given access to the information contained in the ALS and MND

registry. Such a record shall include the name of the person authorizing

access, the name, title and organizational affiliation of persons given

access, dates of access, and the specific purposes for which information

is to be used.

4. Any person who, in violation of a written agreement to maintain

confidentiality, discloses any information provided under this article,

or who uses information provided under this article in a manner other

than that prescribed by the commissioner, may be denied further access

to any confidential information maintained by the department.